Celebrating the little milestones

 2 weeks! We are thankful our Rory Rose has been with us for 2 weeks now. And the past couple days we have been able to hold her again, which makes the world of difference! Our nights with her in the NICU go by so fast as we rotate time holding her, just letting her sleep in our arms. 

It’s hard to say for sure because every day changes, with new challenges, but I feel like she’s making good progress. She hasn’t had a blood transfusion or platelets in days and they’ve removed so many of the lines from her , really just her “face mask” (as mom likes to call it …a.k.a. CPAP) and feeding tube are left for food and for antivirals, and a few sensors to read body temp , etc. 

The fluid is still in her belly and the doctors did say they are a little concerned with her liver. So prayers for her liver and for the fluid in her belly to start to go away on its own! 

The future can feel overwhelming, not knowing what is going to happen and what it’s going to look like, so we still are trying to take things day by day.

We know the future , whatever the outcome, will likely be hard…but we aren’t scared of hard. We’ve learned in life, most good things aren’t easy. We just hope our future continues to have Rory Rose in it, and that in due time we get to take her home and hold her whenever we want! But for now we are enjoying the snuggles and big eyed stares she gives us on our night visits.